Freedom or Tyranny.com

Minette Marrin

timesonline.co.uk

When my little sister was a child in the 1960s, we never said to her that she was mentally handicapped; no one in our family would ever have considered doing so. One day, though, when she was about 10, she received a visit from a social worker, as she did occasionally, perhaps because my mother was receiving money from the council, and this person left my sister in tears. “She says I’m mentally handicapped,” said my sister, sobbing.

“What does that mean?” I asked, hoping the social worker had not said anything even more upsetting. “She says it means I can never get married and have children.”

My sister is now, like me, a woman of a certain age although, unlike me, she has never married. We are very close, although we live two hours apart. We speak on the phone at least once a day and recently she has begun to email me as well, with help from care workers. She is usually on my mind and never more so than last Thursday, when BBC2 transmitted a documentary called Emma and Ben, about a young couple with Down’s syndrome who are deciding whether or not to get married.

In the end, despite their obvious love and tenderness for each other, they decide against marriage, but they go through a lot of anguish along the way. One of Emma’s concerns is that she would not be able to cope with babies, although a care worker points out that getting married need not mean having children.

Even sadder than the fading of the couple’s dreams was, to me, Emma’s constant reflection on her predicament as someone with Down’s and on the limitations that she feels, which we, the viewers, come to understand a little. Anyone who has ever been close to such a situation, or to anyone like Emma or Ben, will be moved to tears by this film.

Its transmission coincides with a recent news story in Scotland about another young woman with a learning disability (LD) who very much wants to get married. Kerry Robertson, a pregnant girl of 17, fled with her fiancé from her home in Dunfermline to escape the powers of Fife social services. Local social workers made them cancel their church wedding in September, and all their plans for the flowers and the reception, on the grounds that Kerry lacks capacity, in the legal phrase, to understand the implications of getting married. They have also told Kerry they may take her baby away after birth because of her learning disability, in the baby’s interests.

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